We run a group on Facebook called Triple X Syndrome (West Midlands) meet up group. This serves as a support resource for Triple X adults living in the UK who'd like to meet other adults with their syndrome. The meets themselves will be held face to face in Birmingham, with periodic virtual meets held online.
We'd like this to be a contact point for adults because as far as we know, we run the only Triple X face to face meet up in the UK. Adults with a diagnosis from outside anywhere in the UK are welcome to join if they are happy to travel to meet or contribute the groups development.
We are aware from talking to Triple X adults that many experience mental health issues. Historically, there was a lack of research to support our findings however new articles have emerged showing that people can experience higher rates of mental health than the general population.
Worryingly, in the UK Triple X Syndrome is not taught on the curriculum to Mental Health professionals. This coupled by a lack of social awareness has made Triple X virtually unheard of. Working to counteract this, we have teamed up with professionals working in the Birmingham and Solihull Mental Health Trust to create a new awareness campaign in our local area. We hope this vital work will support the spread of greater awareness throughout the UK and beyond.
As an early step in this campaign, we have created information leaflets in collaboration with Dr Kate Attfield, Cardiff Metropolitan University, and with advice from Mr. Yap Tet, Medical Director, St. Thomas’s Hospital, London. You can view these on the 'information leaflets' page on this website.
This blog has recently started and will include monthly entries spanning her experiences, challenges and what helps her manage living with Triple X.
We hope these posts will provide useful knowledge to those wanting to learn more, unity and validation to any one with Triple X who needs it, whilst providing options to parents who may be worried about their daughters and are seeking ideas to address a problem.
If you have any suggestions regarding a specific topic you'd like to see covered, please don't hesitate to reach over via the 'Contact Us' page.